Funding Research
One Cookie at a Time
We bake cookies to fund research into rare childhood diseases.
Bake Along Saturday
I am co-hosting an awesome Rare Disease Day bake along with my friend, Gabby from @cooking.on.wheels . We'll be baking a zebra-striped cake roll with zebra-striped chocolate dipped strawberries!!!
Gabby will be giving lots of tips on adaptive cooking so this bake along is especially friendly for the wheelchair community, the muscular dystrophy community, families with small kids, the elderly - everyone is welcome!!!
Saturday, Feb 27 at 2PM EST (noon MST, 11AM PST)
The event is free but if you are able, we would deeply appreciate donations. All money raised will go to Global Genes to support their wide-ranging work with the rare disease community.
Support Cookies4Cures by shopping at JstBU!
For the months of Feb and Mar, I am the JstBU Girl on Fire. That means that 20% of online sales proceeds for Feb and Mar will be donated to Cookies4Cures. This is a super cool tween undergarments brand that really promotes body positivity. Every undergarment has a positive message printed on the inside, just for you. Oh, and they are super cute, super soft, and super comfy.
Through Feb. 28, get free shipping with the code FREESHIP4DANA.
Celebrate Pi Day with us! Order cookies (and pi bites) today.
Pi Day Cookie Event!!!
Sunday, March 14
1. Make a donation on the Cookies4Sophie GoFundMe page.
2. At the very end of the donation process, there’s a box to leave a comment. In the comment box, tell me how many bags of cookies you want (6 cookies/bag) and what name you’ll use to pick up your cookies at Santo. If no comment is left, we will assume 1 bag.
3. The price is, “Give what makes your heart feel good!”
You can pick up your cookies on Sunday, Mar 14. It's Pi Day (3.14)!
When: Sunday, Mar 14
Time: 10AM-1PM
Where: in front of Santo next to Ideal Market
1265 Alpine Ave, Boulder, CO 80304
$50,000 goal reached!!!
With your help, Cookies4SMA reached our $50,000 goal. We are so excited to announce that with our partner, Cure SMA, we are helping to fund a critical research project on spinal muscular atrophy.
Cookies4SMA will continue to fundraise for Cure SMA because the needs of SMA families are always changing. Please support Cure SMA because every donation will help fund critical SMA research and community support programs.
Thank you for funding hope for SMA.
Love, Dana
Hi, I’m Dana
Cookies4Cures is an organization run by kids for kids. My friends and I raise money to fund research into rare pediatric diseases. When a kid has a rare disease, sometimes there isn’t any medicine or treatment. When there isn’t a cure, the only thing to do is to help scientists do research to find one. We fund research because, for kids with rare diseases… RESEARCH IS HOPE!
Photo by Rebecca Stumpf
“My goal is to someday have a Cookies4Cures campaign for every rare pediatric disease.”
Cookies4Sophie
I want to introduce you to my friend, Sophie. Sophie is three years old and lives in Boulder. I met her through my friend, Mila . Sophie has a really rare and really scary disease. It’s called MCTO. It stands for Multicentric Carpotarsal Osteolysis, which means it’s a problem with her bones. In a healthy person, your bones are alive and the cells need to replace themselves to keep your bones strong. Because of a genetic mutation, Sophie’s bones can’t do this. And there just isn’t a not-scary way to describe this — Sophie’s bones are going to dissolve, and it’s already started. So we are helping to fund research for a cure!
Cookies4SMA
In February 2020, we launched Cookies4SMA to fund research into spinal muscular atrophy, a rare disease that our friend, Ben, has. We are partnering with CureSMA, the leading SMA organization in the U.S., to help fund a research grant that will advance scientific knowledge of this disease and hopefully lead to new treatments that will benefit Ben and the thousands of people in the world like him. Cookies4SMA is raising $50,000 to complete the funding for an important Cure SMA research grant. We are super close!!! Will you help us?
Cookies4PANS
We launched Cookies4PANS in 2018 to help our friend, Ollie, who goes to school with us. Ollie got PANS (pediatric acute-onset neuropsychiatric syndrome) when he was in kindergarten. Before that, he was learning to read and write and having fun at school. PANS changed all that. For Ollie to get better, scientists need to do lots and lots of research. Cookies4PANS funds research at the Stanford PANS Clinic, one of the best PANS research centers in the world. In 2018, we raised $30,000 so that the PANS Clinic could hire a post doc researcher, Dr. Rahman. Since then, we have been helping to fund her research. We hope this research will lead to a cure for PANS for our friend, Ollie, and all of the other kids with PANS.
Cookies4Mila
In 2017 when I was 7 years old, I launched Cookies4Mila, our very first Cookies4Cures fundraiser, to help save the life of my friend, Mila. She has a rare disease called Batten, which is always fatal. So far, we have raised over $56,000 and this money helped fund the first ever treatment for Mila’s form of Batten. It is called Milasen.
We hope you’ll join us. Success is sugar-cookie-sweet!
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